Hello Friends. I guess some of you may be wondering where I have been. I haven't posted in ages. I've been having some pain and numbness in my hands and arms, so I haven't been writing much. The pain is kind of distracting anyway. For months now, I've noticed my motor skills haven't been great at times and I've lost strength in my hands. Turning the knobs in my shower is sometimes hard. So is pressing the buttons on my iPod. My hands fatigue quickly when I hand write. Lifting my arms to type this is painful and strenuous. Ahhh! All of this seems to have gotten worse, perhaps because of physiotherapy.
I think that I just ignored these symptoms. I remember telling myself and believing that I was imagining them. I also didn't question them. I didn't realize I was getting numb until my physiotherapist asked me how I felt while he did certain things to me. I really listened to my body and realized and told him certain things were numb. Still, I didn't think that was abnormal. Now I know it is.
My physiotherapist told me I have thoracic outlet syndrome. Basically my spine curvature and fused discs are somehow affecting the nerves and circulation in my arms. Physio should help... Eventually, I hope. It seems to be making my back, legs and arms hurt more. Hurt a lot. I don't know what that's about! My spine and arms are often very sore and less mobile. Sometimes the pain keeps me up at night. Anyway, this is why I haven't been here. I have stalled some projects for this blog until I improve, at least a bit. Actually, another reason I haven't written here is because I didn't want to publish anything else before these projects.
Physiotherapy is helping me to talk about my symptoms. That's a huge part of physio, telling my PT how I've been feeling and how his maneuvers and exercises feel. It's funny because I started physio to improve my balance and reduce fatigue related to the Post-Viral and Dandy Walker syndromes, but my spine has actually taken centre stage. Also, I've learned that my spinal problems most certainly contribute to my pain and fatigue when I'm standing or walking. My physiotherapist has felt muscle spasms in my back and scar tissue around my spinal cord. Why did I let myself get to this point? I should have sought help for this years ago. After a scan of my spine seven years ago, I was diagnosed with spinal problems, but I never sought help for them. It's time to stop being brave and quiet ...
I'm wondering if maybe physio isn't quite helping because maybe something undiagnosed is going on. My physiotherapist was intrigued by this suggestion. You see, because of my Dandy Walker, I have some sort of nerve problem with my right eye. I don't have peripheral vision in the top right corner of it. If you drop a brick on the right side of me, I won't see it coming, but that's about the only problem with this eye thing. Maybe other nerves in my body are affected by my Dandy Walker. I looked it up and Dandy Walker can cause nerve problems. That would also explain other seemingly harmless nuisances I've been getting, some for years, like muscle twitches, swelling and skin pain over my entire body when I have a cold or something (doc told me it's viral neuropathy). Who knows. I guess I need to see my neurologist and get some tests done. I also want advice on medicinal pain control.
After I published my last entry, I didn't want my next one to be about my health, but I wanted to explain my absence. My upcoming projects will be fun, I promise. I just have to take care of myself first.